A Seat at the Table

A Seat at the Table

 I saw the coolest picture online last week. It was of a picnic table at a park. As is typical, it had benches all the way around it, but what grabbed my attention is that one of the benches was cut out leaving room for a wheelchair user to sit next to others who were...

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Sleeping Better at Night

Sleeping Better at Night

It was supposed to be so simple. For a few years, I had been struggling with some scary sleep issues. Caregivers would come into my house for their shift and be unable to wake me up no matter what they did. The more time went by, the more frequent these episodes...

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I Am So Ready!

I Am So Ready!

Anybody who knows me well knows that this has been a huge problem for a long time. It has been a struggle for me to find caregivers, especially ones who are trustworthy and reliable and really want to make my life easier. Covid-19 just made things worse, with the...

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He Was My Rock

He Was My Rock

Even though the Texas heat hung thickly in the air, the icy prickles of anxiety within me were so intense that it felt as though old man winter had taken up residence in my chest. I had been assured by several people that the man I was about to meet was very nice, but...

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A Pathway to More Independence

A Pathway to More Independence

The significance of what was happening in March 2020 didn’t really hit me until one evening when one of my caregivers was stretching me out before bed. He read a text aloud that he had gotten from the University of Kansas. “Because of the Covid-19 pandemic, classes...

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I am More Proud…

I am More Proud…

It is not a memory that I recall fondly. As I sat in front of that room, I could hardly get my words out. And when I did, I stuttered and stammered all the way through the remarks I had prepared. I had not done...

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Of Course You Do…

Of Course You Do…

I remember it like it was just last week I was a senior in high school, and I applied for a scholarship to college. It was through a group called the Exchange Club of the Magic Circle and if I remember correctly, it was similar to a Rotary Club. They had chosen me as...

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Let’s Talk Ableism…

Let’s Talk Ableism…

Over the last few years, I have read several books and numerous articles that cover the topic of ableism. There are people I know who have all kinds of lofty definitions as to what it means, but I like the definition a friend of mine came up with recently. He said...

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Two Kinds of Helplessness

Two Kinds of Helplessness

It is a situation I am fairly sure has happened to everyone on the planet at least once. After a long night of sleep, I woke up and had to pee. Urgently. So, after I swung my legs over the side of the bed, I got into a sitting position, but I was not completely...

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Just Shaking Things Up

Just Shaking Things Up

For as long as I can remember, one of the ways that my family and I have dealt with my disability was through the use of humor. It was a way to lighten things up and a reminder to me that, while my circumstances could be difficult at times, there were far more tragic...

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