Sep 20, 2017 | can do, caregivers, choices, Disabilitiy, Facing a fear, Finding Your Voice, Independence |
It’s no secret that things have been rough for me lately. Not only have I had to face one of my biggest fears, but I have been surrounded by it. Having to go through an agency to meet my caregiving needs instead of being able to hire people independently goes against...Sep 11, 2017 | caregivers, Disabilitiy, Facing a fear, Independence, Making Changes |
It is something I vowed that I would never do again. There have been too many bad experiences in the past. And besides, it takes away my power. Some of my humanity might even be at risk. I have hired and managed my own team of caregivers for more than 31 years, and I...Jun 21, 2017 | Ableism, caregivers, choices, Disabilitiy, Government Programs, Medicaid, Ms. Wheelchair America pageant, negative perceptions |
It was a promise that I made a long time ago, and even if it is uncomfortable sometimes and might go against my grain, it is a promise that I intend to keep. July 28th, 2007 was a good day for me. I had spent the previous week at the Ms. Wheelchair America pageant and...May 12, 2017 | caregivers, cerebral palsy, changing perspectives, communicating respect, Disabilitiy, Disability Blogs, disability etiquette, disability humor, empowering language, Government Programs, Helping people with disabilities, inclusion, power of touch |
When I started my blog almost five years ago, I was because I wanted a way to articulate some of the things I was going through. Living with various diagnoses is challenging on the best of days, and can be frustrating and discouraging on the days that are not so good....Feb 12, 2017 | Advocacy, caregivers, Disabilitiy, Facing a fear, Government benefits, Government Programs, inclusion, Medicaid |
It is a lesson I learned when I was about fourteen years old. About halfway through my freshman year in high school, I started going to the varsity basketball games. Some friends of mine were on the team and I liked to attend so that I could cheer them on. Up until...Oct 12, 2016 | can do, caregivers, choices, Disabilitiy, Emotional Freedom Technique, Employment, Mental Illness, overcoming challenges, What some people don't think about |
Many years ago… I was fired from the first “grown up” job I had. It’s not something I am either proud of or talk about often. The reality is that I just didn’t know what I was doing. Life circumstances prevented me from working at...