May 12, 2017 | caregivers, cerebral palsy, changing perspectives, communicating respect, Disabilitiy, Disability Blogs, disability etiquette, disability humor, empowering language, Government Programs, Helping people with disabilities, inclusion, power of touch |
When I started my blog almost five years ago, I was because I wanted a way to articulate some of the things I was going through. Living with various diagnoses is challenging on the best of days, and can be frustrating and discouraging on the days that are not so good....
Dec 7, 2016 | boundaries, compassion, Disabilitiy, Disability and Relationships, Engaged, Helping people with disabilities, inclusion, power of touch, premature babies |
It’s something I don’t talk about often. Because it is both awkward and not easily understood. As a person affected by cerebral palsy, an advocate, and a teacher in various respects, I often find myself writing about issues that affect people with...
Dec 20, 2014 | Beginnings, co-bedding, doctors, hospitals, kangaroo care, medical emergencies, power of touch, preemies, premature babies, rescuing hug |
I know the story only in the retelling. In the predawn hours of an early fall day, the chill in the air was both outside and inside the walls of that stark, barren hospital. The medical team had been assembled unexpectedly. This wasn’t part of the plan. I had...
Sep 29, 2012 | Accessibility, Accommodations, cerebral palsy, communicating respect, Friends, inclusion, Making people comfortable, Ms. Wheelchair America, Ms. Wheelchair America pageant, Ms. Wheelchair Kansas, power of touch, What some people don't think about |
Hopefully, most readers know a simple fact about me by now: I happen to embrace my disability. I’d be the first to tell you that there have been many times throughout my life when my situation has caused frustration and pain. However, I have also been able to...
