Jun 20, 2021 | hospitals, people with disabilities |
It was supposed to be so simple. For a few years, I had been struggling with some scary sleep issues. Caregivers would come into my house for their shift and be unable to wake me up no matter what they did. The more time went by, the more frequent these episodes...
Sep 16, 2020 | Advocacy, cerebral palsy, Disabled Sports, Facing a fear, high School, hospitals, Laughter, Laughter,, overcoming challenges |
For as long as I can remember, one of the ways that my family and I have dealt with my disability was through the use of humor. It was a way to lighten things up and a reminder to me that, while my circumstances could be difficult at times, there were far more tragic...
Dec 28, 2018 | Advocacy, Beginnings, doctors, hospitals, Independence, Medicaid |
2018 was similar to other years. Full of ups and downs, trials and triumphs, heartache and happiness. As the year comes to a close I find myself reflecting on the things that have past and also anticipating the things to come. I wrote a book. More the Same than...
Jun 3, 2015 | Ableism, communicating respect, compassion, doctors, emergency room, hospitals, how to help, medical emergencies |
Nobody likes to experience emotions that can be negative. Anger, frustration, overwhelm. I can’t think of anyone who feels those things while having a good time. But there is one emotion that I don’t like to experience more than any of the others combined. I don’t...
Dec 20, 2014 | Beginnings, co-bedding, doctors, hospitals, kangaroo care, medical emergencies, power of touch, preemies, premature babies, rescuing hug |
I know the story only in the retelling. In the predawn hours of an early fall day, the chill in the air was both outside and inside the walls of that stark, barren hospital. The medical team had been assembled unexpectedly. This wasn’t part of the plan. I had...
Dec 13, 2013 | Attitudes, caregivers, changing perspectives, Health, hospitals, Lessons, Making Changes, Questions, service dogs |
This was supposed to be a Thanksgiving post. Sorry, I am a few weeks behind… In many ways, it seems like yesterday, but it was so long ago. During the summer of 1986, I was in a stage of my life when it seemed like everything should be going my way. A recent...
