Jun 20, 2021 | hospitals, people with disabilities |
It was supposed to be so simple. For a few years, I had been struggling with some scary sleep issues. Caregivers would come into my house for their shift and be unable to wake me up no matter what they did. The more time went by, the more frequent these episodes...May 31, 2021 | caregivers, cerebral palsy |
Anybody who knows me well knows that this has been a huge problem for a long time. It has been a struggle for me to find caregivers, especially ones who are trustworthy and reliable and really want to make my life easier. Covid-19 just made things worse, with the...Apr 29, 2021 | cerebral palsy, Gratitude, Grief |
Even though the Texas heat hung thickly in the air, the icy prickles of anxiety within me were so intense that it felt as though old man winter had taken up residence in my chest. I had been assured by several people that the man I was about to meet was very nice, but...Mar 31, 2021 | can do, Independence, loneliness |
The significance of what was happening in March 2020 didn’t really hit me until one evening when one of my caregivers was stretching me out before bed. He read a text aloud that he had gotten from the University of Kansas. “Because of the Covid-19 pandemic, classes...Mar 1, 2021 | cerebral palsy, church, Family, Finding Your Voice, Fundraisers, high School, interviews, overcoming challenges, Sports |
[convertkit_content tag=”1443982″][/convertkit_content]It is not a memory that I recall fondly. As I sat in front of that room, I could hardly get my words out. And when I did, I stuttered and stammered all the way through the remarks I had prepared. I had...