Mar 30, 2019 | Ableism, Accessibility, Advocacy, cerebral palsy, Discrimination, Diversity, people with disabilities |
It’s one of the hardest lessons I’ve had to swallow. That there is a difference between reality and how things should be. It makes sense in my head that if I treat my caregivers well and accommodate them to the best of my ability, then nobody will quit without notice,...
Mar 20, 2019 | Advocacy, Attitudes, caregivers, Disability and Relationships, negative perceptions |
I know a whole lot of people in my hometown that say that Jayhawk basketball gets them through the winter. And for those folks, I can see it. But I haven’t ever had a fabulous time watching other people play sports. Instead, I have something else that gets me through...
Dec 28, 2018 | Advocacy, Beginnings, doctors, hospitals, Independence, Medicaid |
2018 was similar to other years. Full of ups and downs, trials and triumphs, heartache and happiness. As the year comes to a close I find myself reflecting on the things that have past and also anticipating the things to come. I wrote a book. More the Same than...
Feb 18, 2018 | Ableism, Advocacy, America, Disabilitiy, Discrimination, Friends, inclusion, Politics |
A few days ago, a friend of mine sent me a video. (Thanks, Beth!) It profiled Kevan Chandler, a young man who is a wheelchair user because he is affected by Spinal Muscular Atrophy. Kevan loves to travel, but because of his disability, he was limited to only going to...
Jan 15, 2018 | Accessibility, Accommodations, Advocacy, Attitudes, Disabilitiy, Discrimination, inclusion |
I’ve been thinking often for the past few days about today being Martin Luther King Day. Dr. King had a dream. That all people would be treated equally regardless of the color of their skin. That there would be no prejudice, no preconceived ideas. That nobody...
Oct 3, 2017 | Ableism, Advocacy, caregivers, cerebral palsy, Disabilitiy, Government benefits, Physical therapy, premature babies |
In the late night hours of October 3rd, 1968, my mom went into labor. With me. It caught everyone off guard because I wasn’t due for another ten weeks or so. But, I guess even then, my stubborn streak showed itself as I made my way into the world early the next...
