Dec 28, 2018 | Advocacy, Beginnings, doctors, hospitals, Independence, Medicaid |
2018 was similar to other years. Full of ups and downs, trials and triumphs, heartache and happiness. As the year comes to a close I find myself reflecting on the things that have past and also anticipating the things to come. I wrote a book. More the Same than...
Oct 14, 2016 | Advocacy, communicating respect, compassion, Disabilitiy, Disability Blogs, disability humor, doctors, inclusion, Laughter, Making Changes, negative perceptions |
When I answered the phone on that Sunday evening, the person on the other end was one of the last I expected. “Lorraine, this is Charlie Y.” My intrigue grew. This man is one of the nicest people on the planet. I’ve known him for years now, he...
Mar 25, 2016 | Advocacy, cerebral palsy, doctors, Emotional Freedom Technique, Friends, Helping people with disabilities, negative perceptions, overcoming challenges, premature babies, The Cerebral Palsy Foundation, United Cerebral Palsy |
It’s not news. I have cerebral palsy. It’s a result of my wanting to come into the world too soon. I guess I found my mom’s womb to be rather boring. (Was it the fact that there was no cable in there? Who knows?) So instead of waiting until my...
Jun 3, 2015 | Ableism, communicating respect, compassion, doctors, emergency room, hospitals, how to help, medical emergencies |
Nobody likes to experience emotions that can be negative. Anger, frustration, overwhelm. I can’t think of anyone who feels those things while having a good time. But there is one emotion that I don’t like to experience more than any of the others combined. I don’t...
Dec 20, 2014 | Beginnings, co-bedding, doctors, hospitals, kangaroo care, medical emergencies, power of touch, preemies, premature babies, rescuing hug |
I know the story only in the retelling. In the predawn hours of an early fall day, the chill in the air was both outside and inside the walls of that stark, barren hospital. The medical team had been assembled unexpectedly. This wasn’t part of the plan. I had...
Jul 11, 2012 | Ableism, boundaries, communicating respect, doctors, Education, Health, hospitals, medical emergencies, negative perceptions |
A couple of days ago, I spent the evening in the emergency room. Let me just say that when a stone takes up residence in my kidney, and then invites all his friends to the party, it just isn’t any fun for me. A new caregiver of mine was keeping me company. In...
